Trevonae Williams advocates for disability awareness

Twenty-four-year-old Trevonae Williams is on a mission to reshape how society views disability.

Diagnosed with a spinal tumour months after completing her degree, she has become a vocal advocate for understanding and acknowledgement of persons with disabilities.

"I don't want sympathy," she stated firmly. "What I seek is acknowledgement that we may need a little more assistance. If I inspire someone along the way, that's a bonus."

Born and raised in Manchester, Williams attended Mount St Joseph Preparatory School and then Manchester High School, where she excelled as head girl and president of the Key Club. These leadership roles sparked her passion for storytelling and communication, guiding her to Howard University in the United States, where she graduated with a degree in journalism in 2023. However, her life took an unexpected turn in December when, after a year of back pain and being misdiagnosed with a herniated disc, the tumour was detected.

"It was like my life changed in an instant. I went from graduation and job hunting to facing this terrifying reality," she said. The tumour was pressing on her spinal cord, disrupting nerve signals essential for mobility.

"It felt like I was trapped in my own body," she recalled. This feeling was compounded by the challenges she faced in securing employment post-graduation.

"It felt like a sick joke, a nightmare sometimes. I thought good things were just not supposed to happen to me."

Williams' treatment journey has been complex. Spinal surgery only partially removed the tumour due to its proximity to her spinal cord. Unfortunately, the surgery worsened her symptoms, increasing her reliance on mobility aids like a cane. Following a second surgery, Williams felt a renewed sense of hope.

"I'd just undergone a lumbar drain procedure to address fluid build-up that had caused so many complications. When I was finally discharged, I felt a mix of relief and uncertainty. Thankfully, the leaks had stopped, and the stitches were healing," she said.

With her focus now on physical therapy and rehabilitation, Williams is gradually regaining her strength.

"I still rely on a cane and my movements are unsteady. The strength in my body had been compromised for so long that regaining it feels daunting. But I'm determined to improve," she said. As she awaits news from doctors about potential radiation therapy or the possibility of further surgery, Williams remains focused on her aspirations.

"I long to return to directing, to stand confidently on set, to walk freely into classrooms," she said. Navigating 'regular' life can be challenging, for example, experiencing severe fatigue for days after social outings. Despite the difficulties, Williams emphasises the importance of community and visibility.

"I want to be a voice for the beautiful community of chronically ill and disabled people. Sharing my story and connecting with others has been my greatest strength," she said. Williams, who was previously defensive about her condition, can now explain it to others with humour. While she encounters pity or awkward stares, Williams has learnt to embrace her situation. She has adorned her cane with rose gold embellishments, to make it a statement piece.

"Let them stare. If they're going to notice me, I'll give them something worth looking at," she said with resolve.

Her journey has also revealed unexpected kindness from strangers, such as security guards offering assistance or simple words of encouragement. Williams' support system of family and friends has been her anchor. Their love has been vital, especially during dark days.

"Seeing the pride in my sister's eyes or the joy on my nephew's face gave me strength. I'm grateful for their efforts to include me in their lives," she said. Creating social media content that resonates with others who share similar struggles has fuelled her spirit.

"If my journey can inspire even one person grappling with their own challenges, it makes every struggle worthwhile," she explained. "In this new chapter, I am learning to embrace the uncertainty, find strength in vulnerability, and continue pursuing my passions, one step at a time."